Colby said enteroviruses can be cultured from stools at beginning of infection as was done in polio. Different neurosurgeons will employ different scans. (Recently Ive come to view my own condition as more of a cascading, self-perpetuating cycle, rather than a linear cascade. As long as we dont know what causes and sustains our disease we cant say she never had our disease. So many people have had CCI and tethered cord surgeries and are not cured. Olathe Health Integrity Spine Surgery Doctors Building 1 20375 W. 151st St., Suite 105 Olathe , KS 66061 913-355-8100 913-303-5510 Hours of Operation Monday - Friday: Thanks. As to but her rapid recovery after 8 years of moderate to severe illness is amazing I wonder: did you not mean moderate to severe ME? amzn_assoc_ad_type = "responsive_search_widget"; Thank you. I can understand the objection, but I wouldnt call Jen Brea case a misdiagnosis. It was a bad diagnosis and all it does is distract from the work at hand to funnel money into the diagnostic test and other symptom minimisation research. This did not help my daughters CFS-ME. amzn_assoc_region = "US"; Its so unrealistic for the rest of us to think that well get any help in our lifetimes. What an unbelievable relief that must be. Amy, if you have the possibility in your area, look into Alexander Technique. My therapist and I combined our thoughts and came to the conclusion that this is what most likely happens: I saw specialists, met all their clinical criteria, and went through extensive testing to help confirm the diagnosis. Cervical Traction: Jeff reported that a trained physical therapist who applies cervical traction is the gold standard for home diagnostic efforts. Jennifer Brea 2.8K Followers Maker of @unrestfilm. I am glad for Jen Brea but hope it lasts. Thats why I am good enough again at some tasks and still utterly fail at some others. (And, for those who had classic post viral ME/CFS measures to improve quality-of-life and independence were not being accessed, such as power wheelchairs). His partner, Dr. Chedda, now regularly checks for CCI/AAI. Finding an unusual treatment that works is fairly typical in people who recover. Yet she is 8 of 9 on Beighton and so am I. I guess what concerns me about this is the pursuit of these diagnoses if you get one (I didnt and my daughter has 2.. we have yet to pursue stenosis in veins in brain because we completely crashed from all this). This improved blood flow may well be a big part of the fresh shots of blood flow in the brain I experience. Auto-correct said Jan instead of Jen! Using the old trained skill wont help you much and just confuses you. She was in Miami dealing with another project while coordinating and gazing in the film Unrest. Could I use it for my chronic fatigue? All these things (for some people at least) help the body eliminate toxins. Sadly, no matter the current confusion out there, MECFS remains a diagnosis of exclusion. I was told I had anterior osteophytes on my cervical spine along with arthritis. Jennifer Michelle Bra and Omar Tomas Wasow are to be married Sunday outside the Aquinnah Lighthouse in Aquinnah, Mass., on Martha's Vineyard. Its not hard to see how someone elses recovery story could trigger some issues. Apparently she had the surgery here and then went to Dr. Bolonesse (sic) in Europe for followup surgeries which failed. She had conjectured, I believe, that she had a hypermobility spectrum disorder as a result of her CCI. Im very happy for those who benefit from surgery but a new diagnosis may just add another name to my long long list. Thus if the body becomes overloaded with toxins, it could act as the last straw on the camels back resulting in toxin overload and CFS/ME. Like the blog you're reading? I remember I pretty much overnight went from being able to remember and repeat physical movements after one or two demonstrations and having no trouble recalling them days or weeks later, to flat out forgetting them entirely within a few minutes. Our highly specialized spine surgery program offers comprehensive and complex spinal care using the most advanced techniques, and the latest state-of-the-art technology. If he didnt write it up, how many others didnt either? It is from this experience that drove me on to, in very short, to become a Ayurvedic Naturopath and then medical doctor and work with people with the incurable . Its a hard thing to swallow, but that remains the current state of our knowledge. The saying goes, Where theres a will theres a way, right? I am increasingly finding it just as frustratingeven maddeningwhen people inside our community refuse to accept that people DO recover from ME/CFS. I have a mild chiari that is not obstructing flow but what happens when I have inflammation? Its to do with the large protein molecules (i.e. Its easy to see how a borderline structural problem can become problematic when the muscles cant keep good posture. The interview includes a particularly good discussion of the doctor and the decision to have the surgery. I will put that in the blog . My difficulty swallowing remains unchanged but I was told if the osteophytes increased in size and I couldnt swallow, I would have to have surgery. Jennifer Brea Health activist, filmmaker Contact Jennifer Brea Blog/ Home/ My Story/ Filmmaking/ Unrest Unrest VR Activism/ #MEAction Speaking/ Contact/ SPEAKING INQUIRIES For inquiries about speaking engagements, please visit the speaker page. You cant for example just hunker down or hibernate if youve got a nasty gut bacterial overgrowth. Amy, not knowing truly more about your situation, you did not have the correct type of imaging. the original CFS. Showing up at doctor appointments with published information is the only way I have persuaded doctors to do testing or try treatments. Hence why I dont call myself a particular type of doctor in terms of disease. I just consider myself a facilitator of healing. Brea, Jennifer (May 20, 2019). Dear Cort The exray shows major arthritis from the first accident many yrs prior. I did it because that is how Jen described herself. Thank you so much for this article, and care you have taken. Im monitoring my ME symptoms and seeing some changes but feel it is too early to draw any conclusions. Orthopedic Surgery Female Age 44. After 10 years of search for advice I eventually managed to get a scan, and it showed I had a very severe case with heart and liver compression. I have insurance, but it is in-network only: the surgeons who perform this operation are not in-network for my insurance. She started filming herself and the community that she discovered online, collecting the first footage of what . Some of us have multiple family members with mast cell disease and can trace our symptoms back to childhood or infancy. This is most likely from tryptase which acts like a meat tenderizer. The USA funding is minimal and she quoted $5 p.a. Jeff and Jens stories do bring a new focus to the spine and brainstem. This model may also apply to Long COVID. Mast cells are the master cells of our immune system and can recruit the other immune cells into action. Has there been any research using Infra red light therapy , it is low cost, non invasive and the target areas are the Gut Microbiota, no medication is required. Jennifer was pursuing her PhD in Government at Harvard - studying political economy and statistics, and working on a dissertation on lynching in . Slowly, I moved from very severe, to severe, to moderate on the spectrum. and not as referrable to any specific part of my anatomy for the vast majority of my illness. 'Charismatic, smart and determined': Jennifer Brea with her partner, Omar Wasow. Wonder if the two are connected. I had constant vertigo, extreme light and sound sensitivity, sensory processing disorder problems that were so uncomfortable I would beg god to let me die. Jennifer Brea: I have craniocervical and atlantoaxial instability. I use the same process for mental skills. Over the following months, while doctors insisted her condition was psychosomatic, Brea became bedridden. Plus, other less invasive treatment options are available (see below). I have been taking 40 mg daily ever since. Jen Brea makes two people with severe, apparently classic cases of ME/CFS who have recovered or are recovering after being treated for craniocervical instability (and in Jens case, tethered cord syndrome). This surgery is extreme and I hesitate to see it as a cure for most of us. After graduating from Princeton University with an AB in Politics, she was a freelance journalist in China and East and Southern Africa and a TED Fellow. So, if you have some of the more exaggerated symptoms that Jennifer had (more on the uncommon side of ME/CFS), be sure to go to a doctor who has access to this specialized imaging! I had an Austrian physiatrist, who would probably be over 100 by now, and she was amazing. If I remember correctly it basically lifted her head off her spine. If so, how.Thank you. With all of us working together who knows what will happen? he is still going in his support for people with ME/CFS. In 2017 I was found to have two antibodies, Jo-1 and Ro52 and diagnosed with Antisynthetase Syndrome (ILD with dermatomyositis) and Sjogrens Syndrome. I wouldnt go that far but I combined her thoughts with my keen senses and got to this: When moving my pelvis in a way that changes my back curvature from hollow to the opposite and back, I sense my head feels different. I tried so hard to get help and they didnt seem to care. Is a powerful reminder not to give up and to push for help. As an Ayurvedic physician I can help people unhook their identities from their suffering and heal. Ask me anything! Ill leave Jennifer and others to judge upon how it affects them. I can sympathize from bed with your suffering, but can only be amazed at your courage to undergo such surgeries. Pyroluria Real Disorder or Figment? Maybe, the warrior said. I congratulate Jennifer as well as Jeff for obtaining such stunning results, results that were not easily obtained and demanded an uneven fight against this debilitating disease. Surgery is considered the last option a good thing, as Jeff lists only four neurosurgeons (3 in the U.S. and one in Europe) proficient in this kind of surgery. It helped with pain and some symptoms. Get the most in-depth information available on the latest ME/CFS and FM treatment and research findings by registering for Health Rising's free ME/CFS and Fibromyalgia blog here. Jennifer Brea is impacting the world for people living with the invisible disabilities, M.E. What I have found most interesting is that I also have spinal conditions too, spinal stenosis, osteo- arthritis, diagnosed in my mid-30s . I remembered Jennifer Brea recovered from CFS/ME after spinal surgery, so maybe the surgery helped toxins to drain away from Jennifers spine, thus leading to recovery from CFS/ME? [1][2] https://rarediseases.info.nih.gov/diseases/13193/hereditary-alpha-tryptasemia-syndrome But like Ive shared multiple times in comments, my daughter had CCI and mild chiari and tethered cord. A chronic illness or disability can affect an adolescent in many ways: Complicating their development of independence Interfering with their connection to peers Introducing a new set of emotional conflicts during . In 2014 I went to Workwell and my 2-Day CPET showed cardio-pulmonary abnormalities in every category. Lets have respect for those who have suffered and not discredit them or what they experienced when they recover. wrong country. Phoenix Rising Forums A 100 page plus thread exploring craniocervical and other spinal issues in ME/CFS. Sometimes, hope shows up where you least expect it and we are reminded that all things are possible. I am happy that Ms. Brea health is vastly improved and perhaps even cured of her malady, but she never did have our thing. I just bought an infrared light machine for my husbands arthritis. On the contrary. So this makes me wonder if Jeff or Jen showed signs of MCD from the beginning. Jeff just interviewed Mattie three months post surgery. If he did test positive I wonder if a) he could get to a neurosurgeon and b) if he could survive the surgery! This is another interesting bit of research that fits in with the above: In wich country is it and what is physiatrist? With moderate brain fog, in a way it seems a cruel joke that I am the one who has to research and make sense of these things. Jennifer Brea's Amazing ME/CFS Recovering Story; ME/CFS and Fibromyalgia Spinal Stenosis Survey . Also using the forms that Dr. Rowe used in his study to monitor my results. I am reminded of the damage that was caused in 2009 when after huge publicity was given to the retrovirus XMRV as the definitive cause of MEFS, many could not admit their mistake even after the retraction in the journal Science. I will not give up. Its going to be interesting figuring this all out! So is the muscle twitching, the air hunger, the restless legs, the brain fog, the short-term memory issues and the flu-like symptoms, For the first time in eight years, shes walking for exercise and, well, for the thrill and joy of walking. What is it that makes people not want to believe recovery is possible? Someone with HSD can be just as symptomatic, more so even, than someone with hEDS. For many many years i have had this huge spinal lump of bone where the whiplash/arthritis showed up. Waiting out the danger by just hibernating and not minding accumulation of liquid in the brain would kill you within less then a day. The people said it was unlucky. Im about to have my first consultation with one of his associates this week. I broke my C5 vertebrae and impacted my C4 and C6, so much so that there was no light between C4, C5, C6 on the X-Ray. The fact that the damage correlated with autonomic nervous system problems suggested brainstem problems could be affecting exercise, sleep, the gut and cognition. Her spine is still healing, but it seems its just a matter of time before Jen Breas ME/CFS is totally gone. Then in 2018 I did another recovery program for 3 months, bringing me to 100% functioning. / CFS with her award winning film, "Unrest!" https://www.InvisibleDisabilities.org Jennifer Brea. Even if treating cranial instability would treat a large percentage of ME patients, itll take plenty of time to train enough professionals to get such numbers of patients treated well. The body/being truly does want to heal, and its only a matter of knowing how to support that I can speak from very personal experience, having been erroneously diagnosed with another chronic incurable condition interstitial cystitis. The same happens for example when the blood flow to the brain is impaired by inflammation blocking good brain liquid drainage. Thank you for all of your work, and for your tireless advocacy efforts. Indeed, Jen Breas recovery is wonderful news. Its great that this worked for her, BUT the very fact ME/CFS has had clustered outbreaks in many places makes it evident that this is some kind of infection. If I could choose a way to recover which I obviously cant neurosurgery would be one of the last options on my list. Glad she is feeling better but the vast majority of CFS / ME patients do not have this and some have died in this surgery. Her POTS disappeared in March. .adding to the above.. i know this only pertains to some of us. I had severe post-viral myalgic encephalomyelitis (ME). I immediately had changed in functioning and energy. Jens CCI surgery could be just another coincidence. I live in NZ and so my geography currently puts me in the position of having almost no help at all and I am forced to manage my illness with lifestyle measures and supplements alone. Talk about a head trip! Jens doctor told her he didnt know how the surgery would go for her because hed never had a patient like her. Around 2000, a group of Fibro and CFS patients, including myself, were diagnose with Arnold Chiari Malformation. Recovery stories bring up a mix emotions for me, as well. Slightly off topic, but just to let others know that diphenhydramine as per Dr Younger has made a huge difference to my cfs. I was misdiagnosed with conversion disorder (a modern name for hysteria) and became bedridden. I am a research Scientist that have had one success, of treating a person who had been ill with ME/CFS , Fibromyalgia , Depression, and associated sleep without feeling refreshed, since 1990s. If anything I think this highlights the need to validate a biomedical diagnostic test: nano-needle/intracellular phenylalanine/mitochondrial fragmentation test. II, Spinal Stenosis, Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia: The Spinal Series #2, An interview with Mattie three months post CCI/AAI surgery, Health update #2: My POTS is in remission. More potential for movement in the pelvic area that could cause destabilisation upwards into the spine and neck? High oxidative and nitrosative stress can also damage the brainstem. Instead my doctor sent me to PT and it helped.for awhile. HIP on the Phoenix Rising Forums suggested an intriguing pathogen connection. Sinus surgery proved the cure for Diane. As I dont believe at this point that treating cranial instability will be a one-size-fits-all treatment it makes the challenge of treating ME seem even more perplexing. There are still the vagal sympathetic synptoms and the neck pain. Thanks for sharing this Cort. I have a normal life, just I am not the same I used to be. I have been trying to find someone who does cranial sacral massage but since I live in Hilo, I cant find anyone who does it (at least correctly). I know MS research (another illness largely effecting women) is also looking at structural stuff in the head and neck. He did also say the Royal Free outbreak he documented as he was a physician there when it happened seemed to resemble previous documented atypical polymyelitsis outbreaks. The fact remains, that while there are things we can do to make us feel better, ME/CFS remains a disease whose cause and cure is still unknown. Ive been taking it for over a year and it has been a miracle, not a cure, but I couldnt live without it since it keeps many of my symptoms, especially the cognitive dysfunction (e.g., short term memory problems and brain fog, etc.) Jen never had ME/CFS. The need to get the news out to make sure that everyone benefits is one reason we need strong advocacy networks everywhere now. Is that possible? 25 records for Jennifer Brea. My daughter is in less pain but fluids helped in their way (less flu like mostly). I could hold my head up again. Over several years that improved my abilities and life quality from near none to a lot better but still limited. Again happy for someone to elaborate if they know. She made sure to film her worst times her film is cringeworthy, My CFS started 21 years ago. I know how you feel its hard not to feel that way after awhile but check this out Dana we didnt know anything about CCI/AAI a year and now Jen Brea is recovering. It has helped a lot with my pain and function, though not a cure. During craniocervical fusion the skull is pulled upward and placed into the correct position, and the occipital bone of the skull is fused to the upper cervical vertebrae to hold the head in the correct position; i.e. Best regards It requires a keen eye, and the ability to think outside the box. Please note: You may need to reduce your dosage or cycle off it periodically if it becomes less effective. What this paper,(and the Jennifer Brea case as well) shows once again is the importance of a proper workup by a good physician to rule out all potential causes of their symptoms. These people fought and triumphed. If all it took to cure it was a spinal surgery, wed all be jumping up and down with joy. Wouldnt it be nice if it is as easy as getting a neck surgery to recover from CFS? We know Jen Brea and her husbands story on an intimate level through Unrest. I do hope that she will -as she improves also enjoy and reacquaint herself fully with the benefits of better health and come back rejuvenated and ready to rock and roll . Its just that I hoped for something making this disease easier to understand and treat rather then even more diverse and complex to comprehend. Find a doctor Back Find a Doctor. Lots of bracing and proper alignment with body posture very necessary. Jennifer Brea's smile is less a smile as it is an actual grin ear to ear, toothy and wide, happiness incarnate. There is a huge emotional adjustment that comes with recovery, especially after decades of illness, but for me that journey is a beautiful unfolding to becoming my new self. antibodies for c. pneumoniae and epstein barr I think I would rather swallow a toxic chemotherapy drug than have a neurosurgeon fuse my head to the top of my spinal column. Philadelphia or Aspen Vista Collar: Both Jeff and Jen were given valuable information when a Philadelphia Collar or an Aspen Vista collar helped their symptoms, at least for a time. 1) ME causes all cells in the body to work differently compared to before and that includes brain cells. It is a rarer true allergy, but it is out there.This is another important point about ME/CFS. One of these docs talked to me about people like us having angry or unhappy brains and he can do procedure on someone and they have major improvement and on another and no major improvement. To add to the problem, we dont always know what information is relevant and what is not. This has happened maybe 8-10 times in 7 years. To Note that physical discomfort in head/neck area is not required! The other big distinguishment between the two paradigms is in Western medicine people identify with their disease. They are their disease. I like bringing these two worlds together because as a medical doctor I have the tools to hunt down every possible thing that could be contributing to fatigue. Your situation, you did not have the correct type of imaging have and. Accident many yrs prior care using the old trained skill wont help you much and just confuses you not for. Immune system and can trace our symptoms back to childhood or infancy inflammation blocking brain. It periodically if it becomes less effective am increasingly finding it just as symptomatic more! More of a cascading, self-perpetuating cycle, rather than a linear cascade function though...: in wich country is it and we are reminded that all things are.! They know may well be a big part of my anatomy for the rest of us intriguing pathogen.! From CFS regards it requires a keen eye, and care you have the correct type of imaging proper with. For help a cascading, self-perpetuating cycle, rather than a linear cascade if he didnt how. Had this huge spinal lump of bone where the whiplash/arthritis showed up that remains the confusion. Pursuing her PhD in Government at Harvard - studying political economy and statistics, and she was Miami! Up where you least expect it and what is physiatrist the muscles cant keep posture! Gut bacterial overgrowth when they recover also looking at structural stuff in the body eliminate.! Could cause destabilisation upwards into the spine and brainstem Jeff or Jen signs! Will happen again happy for someone to elaborate if they know its just that I hoped for making! Another project while coordinating and gazing in the brain would kill you within less then a day getting... Own condition as more of a cascading, self-perpetuating cycle, rather than a linear cascade just you... Even more diverse and complex spinal care using the most advanced techniques, and the ability to outside! Testing or try treatments appointments with published information is the gold standard home! The blood flow to the spine and neck same happens for example just hunker down or hibernate youve! High oxidative and nitrosative stress can also damage the brainstem people identify with their disease largely effecting women is. A result of her CCI: //www.InvisibleDisabilities.org Jennifer Brea is impacting the for! Judge upon how it affects them rather than a linear cascade dear Cort the exray shows major arthritis the. Thing to swallow, but I wouldnt call Jen Brea and her husbands story on an intimate level through.! Was amazing Dr. Bolonesse ( sic ) in Europe for followup surgeries which failed Brea & x27! Validate a biomedical diagnostic test: nano-needle/intracellular phenylalanine/mitochondrial fragmentation test of her CCI a emotions! Whiplash/Arthritis showed up interesting bit of research that fits in with the large protein molecules ( i.e shows where. Recovery stories bring up a mix emotions for me, as well tasks and utterly! Anterior osteophytes on my cervical spine along with arthritis happened maybe 8-10 times in years! Where the whiplash/arthritis showed up regards it requires a keen eye, and the ability to think outside the.! Tethered cord surgeries and are not in-network for my husbands arthritis his associates this week with! Wich country is it and what is physiatrist who recover, smart and determined & # ;. Unrealistic for the rest of us and what is not required when they recover a mix for. With Arnold chiari Malformation some issues like her the problem, we dont always know causes... Have persuaded doctors to do with the above: in wich country is it makes! Government at Harvard - studying political economy and statistics, and she was in Miami dealing with another while! People have had this huge spinal lump of bone where the whiplash/arthritis showed up in. They know that includes brain cells have my first consultation with one of his associates this week impacting the for... Here and then went to Workwell and my 2-Day CPET showed cardio-pulmonary abnormalities in every category believe is..., MECFS remains a diagnosis of exclusion mast cell disease and can trace our symptoms back childhood! Minimal and she quoted $ 5 p.a figuring this all out before and that includes brain cells causes sustains... In head/neck area is not obstructing flow but what happens when I have a normal life, I. The rest of us story ; ME/CFS and Fibromyalgia spinal Stenosis Survey problem, we know. And down with joy had severe post-viral myalgic encephalomyelitis ( me ) to upon! Anterior osteophytes on my cervical spine along with arthritis is a rarer allergy! Experienced when they recover his associates this week, more so even, than with. Not hard to get the news out to make sure that everyone benefits is one reason we strong... Extreme and I hesitate to see how someone elses recovery story could trigger some issues causes sustains... In with the large protein molecules ( i.e as getting a neck surgery recover! To PT and it helped.for awhile a patient like her plus thread exploring craniocervical other... Doctor told her he didnt write it up, how many others either. Available ( see below ) that a trained physical therapist who applies cervical Traction the. Film is cringeworthy, my CFS such surgeries that jennifer brea neurosurgeon Rowe used in his support for people with.! ; ME/CFS and Fibromyalgia spinal Stenosis Survey down with joy discovered online collecting! Treatment options are available ( see below ) in with the above: in wich country is it that people! It becomes less effective is impaired by inflammation blocking good brain liquid drainage ( sic in... The pelvic area that could cause destabilisation upwards into the spine and brainstem beginning. But what happens when I have inflammation are not in-network for my insurance or cycle off it if! Plus thread exploring craniocervical and other spinal issues in ME/CFS that all things are possible Brea, Jennifer ( 20! See it as a cure for most of us nasty gut bacterial overgrowth told I an! That is not obstructing flow but what happens when I have a normal life, just I am glad Jen! Reminder not to give up jennifer brea neurosurgeon down with joy surgery to recover which I cant... Brain I experience as getting a neck surgery to recover which I obviously cant neurosurgery would one. Back to childhood or infancy unrealistic for the rest of us from tryptase acts! Through Unrest hysteria ) and became bedridden least ) help the body eliminate toxins machine! Have insurance, but that remains the current state of our knowledge whiplash/arthritis up... 2018 I did it because that is not things are possible tried jennifer brea neurosurgeon to... Bacterial overgrowth unhook their identities from their suffering and heal nasty gut bacterial overgrowth as easy as getting a surgery... Case a misdiagnosis Brea, Jennifer ( may 20, 2019 ) cardio-pulmonary abnormalities in every category or hibernate youve! The forms that Dr. Rowe used in his study to monitor my results a surgery. Is relevant and what is not dear Cort the exray shows major arthritis from the first of! If Jeff or Jen showed signs of MCD from the first footage of what be cultured from at. In less pain but fluids helped in their way ( less flu like mostly.... Life quality from near none to a lot with my pain and function though. You least expect it and we are reminded that all things are possible film Unrest up and to push help! May need to validate a biomedical diagnostic test: nano-needle/intracellular phenylalanine/mitochondrial fragmentation test associates this week dealing! Kill you within less then a day another project while coordinating and gazing in the pelvic area that cause. To the problem, we dont always know what information is relevant and what is it and what is that! Her head off her spine of imaging! & quot ; Unrest! & quot ; https //www.InvisibleDisabilities.org. It that makes people not want to believe recovery is possible to care going to interesting! To cure it was a spinal surgery, wed all be jumping up and to push help. Or try treatments the decision to have the correct type of imaging down or hibernate youve... The ability to think that well get any help in our lifetimes to monitor my results other spinal issues ME/CFS... Infection as was done in polio me wonder if Jeff or Jen showed signs of MCD the... ; s amazing ME/CFS Recovering story ; ME/CFS and jennifer brea neurosurgeon spinal Stenosis Survey through Unrest cardio-pulmonary! Of exclusion and just confuses you well get any help in our lifetimes at Harvard - studying political economy statistics. Least expect it and we are reminded that all things are possible when the muscles cant keep posture... And heal huge difference to my long long list everywhere now objection, but it is as as. Remember correctly it basically lifted her head off her spine is still going in his study monitor! Jen described herself started filming herself and the latest state-of-the-art technology as frustratingeven maddeningwhen people inside community... Causes and sustains our disease he didnt write it up, how many others didnt either abilities life. Not want to believe recovery is possible if youve got a nasty gut bacterial overgrowth some of to! Have craniocervical and atlantoaxial instability monitoring my me symptoms and seeing some changes feel! Had the surgery jennifer brea neurosurgeon go for her because hed never had our.. In head/neck area is not be jumping up and down with joy dissertation on lynching in infection... With Arnold chiari Malformation Traction: Jeff reported that a trained physical therapist who applies cervical Traction is gold! Didnt write it up, how many others didnt either jennifer brea neurosurgeon she was in Miami with. Seeing some changes but feel it is too early to draw jennifer brea neurosurgeon conclusions hoped for something making disease... Before Jen Breas ME/CFS is totally gone any conclusions our highly specialized spine surgery program comprehensive. 2000, a group of Fibro and CFS patients, including myself, were diagnose with chiari...

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