I have had accident with single fision in 2004 that when my problems began I was never the same had pain was uncomfortable I may aged and lived with it in 2015 I was in another more severe accident and I had another surgury and this was a triple fusion after surgery I was still in extreme pain well had another MRI is when the Dr found it my spine Al cord on first MRI you could barely see the compression against the spinal cord on the spinal cord was a dot look like dime size white spot when we saw the second MRI that little spot had grown to the size of 2 quarters on top of each other my spinal cord compression has done peinant damage to the cord that is irreversible. This is more like a explosion that will knock me out with out provocation. Others may benefit from spine decompression surgery with spinal fusion, which is meant to stabilize the spine after herniated discs, bone spurs or ossified ligaments are fully or partially removed. Another consequence of myelomalacia is improper circulation of blood to the area damaged, resulting in further damage to the spinal cord. The first line of defense against myelomalacia is prevention. concerned? In panama from Florida doing this but would like to hear about actual results. I went to see a chiropractor who after doing a full body X-ray told me that I had been in a car accident, which I had not mentioned, in my late teens or early 20s. Mine is located in the cervical region The one surgery that has had the most positive effect was the insertion of an intrathecal pain pump. I was just diagnosed with c-4-5 myelomacia. I had MRI imaging as part of an MS check up and Myelomalacia was found at C-6/7. The most commonly used measure is life expectancy at birth (LEB), which can be defined in two ways.Cohort LEB is the mean length of life of a birth cohort (all individuals born in a given year) and can be computed . All the odds I bet on getting well are now-lets see what tomorrow brings. Myelomalacia symptoms can occur suddenly after a spine injury, or the symptoms may slowly begin as degenerative spine damage becomes worse. [citation needed], With the growth in the elderly population of humans, there has been a rise to myelomalacia. IF YOU READ TO THE END, YOULL SEE a very QUICK TURN ABOUT THAT TOOK place AND a HUGE, IN YOUR FACE happening. Bone spurs. Nobody, hardly any friends would/will talk to me because they felt awkward, I assume. This has severe consequences throughout the body. Also read: Promising New Treatments for Myelomalacia and Spinal Cord Injury. Oh me after reading everyone else's problems this scares me to death. So if Im symptomatic in most ways does that mean its advanced? I did my best though. Whenever you experience back pain for more than two weeks an appointment to the doctors office is mandatory. What improves health and life for different people, and why? I was a good athlete and my son who is now a senior plays football like I did and I couldnt do hands on teaching for him because of this condition. this summer was the first time i got to use them. Excuse me now I have to go take my daily pain pill for the morning. 5.0-year difference between average US female and male lifespan expectancy. Read about it on the, Interacting with other PatientsLikeMe members improves your health. In some cases patients come in with hypertension, but later discovered they have myelomalacia. This is probably all over the place but its like unbelievable my journeys over-whelming and just now doesnt always take my breath away. If the injury site causes an insufficient amount of blood to be supplied to the spinal cord, it will lose volume and soften. [7] Though every case is different, several cases reported loss of motor functions in the extremities, areflexia or sudden jerks of the limbs, loss of pain perception, or even paralysis; all of which are possible indicators of a damaged and softened spinal cord. One could have difficulties grasping objects. If anyone hasnt investigated Medtronics hardware I believe is the culprit how can all of us end up with this rare disease. The biggest disservice my doctors did for and 2 me was to not face truth any better than I & try to fix unfixable. I had no idea what this condition was until now. Other cervical myelopathy symptoms may include: Numbness or tingling in the arms and hands, Clumsiness and poor coordination of the hands, Difficulty handling small objects, like pens or coins. My pain started in 1999 And they found the myloMalaysia in 2014 had c5- c7 surgery Dr said I was gonna be paralyzed if I didnt have the surgery, I went to the hospital for my left side of my mouth drooping and slurred speech, memory loss When they found it. Again, it is important to check with your doctor and see if you are allowed to perform any of these exercises. **Thats a tell-tell for spinal epidural hematoma, but if recent laminectomy performed its very possible for SEH present if new symptoms, such as I was about to experience. So, we doubled the average human life in 100 years. No one understands what I am going through. [5] Damage to this system affects specific functions of the body, primarily relating to the function of muscles. Having anterior cervical discetomy and fusion with posterior cervical foraminotomy and fusion. I wanted to keep that feeling but realized my independence would be lost. I was exhausted to finish this and stopped spell check. And most doctors out of the dozens and dozens I have seen begging to listen and help me are all so Ladi Da about it. I understand there is cord contact in my cervical, thoracic and lumbar spine now. Id be a guinea pig to remember what it feels like to have no psin. The surgeon, Dr Riew in NYC is one of the best cevical spine surgeons in the world. So Dr. P and Dr. M from Shrewsbury New Jersey if you ever read this ROT in HELL you MFs!! Is it safe to perform decompression of the central disc? Life expectancy after injury ranges from 1.5 years for a ventilator-dependent patient older than 60 to 52.6 years for a 20-year-old patient with preserved motor function. That was right after 7/14/2020s correction for 2/2019 surgery, the failed back surgery fix and then he added another double fusion. And it helps. Ill lose my legs at some point and I definitely dont want that. Disclaimer, National Library of Medicine But a friend of mine told me to check and see if I have CRPS because a lot of my symptoms are similar to what she has. Spinal cord swelling in patients with cervical compression myelopathy. The next day I walked 25 ft then each session had significant progress, next session 81 ft, then on the weekend I raised myself 100% on my own, out of my wheelchair while in parallel bars for safety, I Could not feel if the assistant behind me raised me so they filmed it for me. c5 c6 fusion. Suesan, Breaks my heart to read your story. Summary of background data: [citation needed], When myelomalacia occurs, the damage done to the spinal cord may range from minimal to extensive. Can anything be done at this early stage or does this progress regardless of any surgery to decompress the spine? Therefore, cervical spondylotic myelopathy is more common in people 50 and older. Some by unforseen error If any part of this setup is affected or altered, one could get into serious health conditions and this could be a serious threat to the life expectancy of a person. AND again. My husband had MRI next day called from NEURO-SPINE DR. for surgery scheduling. I too feel as though my quality of life has suffered a tremendous blow. My husband had surgery today for this ACDF with myelomalacia in three vertabre. However, this condition can affect anyone because damage to the spinal cord can happen after an injury. You appear to have JavaScript disabled in your browser. I have been in chronic pain for over thirty years and have had so many MRIs and CT scans that I could wall paper most of my house with the results. Another example of how poorly managed health care is in the US. The honesty of the we really dont know, has me more worried but less inclined to search further for answers. It will depend on how serious the spinal injury was, where the original injury was, and how quickly the paralysis is spreading. 1829. . The difference you dont even notice that your getting the infusion. Here in Australia we are told to go home and die no pain meds just told to go I never knew I live in a 3 or 4th world country they say Myelomlacia cannot be treated lucky me to live in a country that cares, Yes mate I talking to you and anyone least that live in this nightmare to you all am sorry as I lived with this now for over 7years 8 in February that 8 years of hell makes me think what did I do to get this. On top of that the scaffolding that is use like (Infuse) is a walking time bomb. This happened to my neck 3 weeks ago. The doctor will conduct physical examination to ascertain whether there are any changes. They replaced, rebuilt and injected stem cells. It does not mean that the average person living in 1200 A.D. died at the age of 35. The more I exercised, the more the muscles in my legs were sore to the extend i could not walk. This softening can lead to a loss of spinal cord volume, which can cause problems throughout your body. It was severe by that time because the only symptom i had was a stiff neck feeling. Life expectancy at birth. C5 and C6 corpectomy and ACDF C4-7 with good recovery prognosis expected from the presence of myelomalacia. However, in some patients, the condition worsens rapidly. I knew the risks but took most freely. The surgeon did not say any of this. I live in well hidden depression and fear and out of pride force myself to do the simplest tasks only to suffer the nest day due to severe muscle weakness. Study design: Dr. said he has a ling road but very optimistic. Besides the gradual wear and tear of the spine, cervical myelopathy can also be caused by the ossification (hardening) of the ligaments surrounding the spinal cord, such as posterior longitudinal ligament and ligamentum flavum. It was removed the next week but the damage was done. Posterior Laminectomy WITHOUT fusion - have you had one? *I was in pain still so thats why pain Dr requested it and this was 4 months after double fusion surgery, laminectomy,etc. However, sincemyelomalacia is typically diagnosed long after the onset of nerve damage, post-op tests suggest that other signs of the conditions can be easily overlooked. In the cervical spine, eight nerve roots branch out that primarily control the function of your shoulders, arms and hands. The gradual degeneration of the spine often takes the form of cervical spinal stenosis, which is the narrowing of the spinal canal in the neck. Now your world of hurt starts but be lucky your not in Australia as they say Myelomlacia is untreatable so no pain tabs for me go home and be happy.Myelomacia sucks, Kim, are u speaking to me? Godspeed to you all and I wish only the best for each of us. 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